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ANNOUNCEMENT #1: Hooray!
With the help of family and friends, it became our family’s mission to fund ALS research so that, some day, when someone heard the words, “You’ve got ALS…” they will also hear “…and this is how we will treat it.” We set a goal to fund $1 Million of ALS research. 13 years later … DRUMROLL … WE HAVE REACHED THAT GOAL! $1 Million of ALS research funded! |
We could not have reached this milestone by ourselves. So, when we say “we reached this milestone,” we mean all of us did. Our Planning Team who helped create and run our annual golf tournament for 13 years; golfers, volunteers, and sponsors who participated in in the event; and donors who have supported our cause and our mission. A million thanks to you all. Together, we ALL were a part of this phenomenal achievement.
Reaching the $1 Million of ALS research was A goal, but our ultimate goal was, and continues to be, finding a cure for ALS.
Paul was diagnosed with ALS in 2009, and we heard 2 to 5 years. There was little research, very few clinical trials taking place, and just 1 treatment. There was no hope.
Now, since the beginning of 2022, 117 clinical trials worldwide are ongoing or recruiting. There are now 2 treatments instead of 1. And there is a 3rd being reviewed this month by the FDA. Now, there is hope.
ANNOUNCEMENT #2: Bittersweet Emotions
We at CURE ALS have decided that this year’s tournament will be our last. It was a difficult decision to make, but it’s the right one for us.
Please know that Paul and I and our family thank you tremendously for your support. There are no words to describe what it feels like to be the recipient of the kind of support we have received over the years. It’s kept us strong, it’s given us a feeling of security, and it’s let us feel your friendship and love. Thank you for that.
Numerous ALS families have joined us on this journey, coming year after year to honor or remember their loved ones impacted by ALS. At the post-golf ceremony, we asked ALS families to stand and share the name of their loved one who had been impacted by ALS. As name after name after name was called out, the importance of why we fund research rang loud and clear.
ANNOUNCEMENT #3: New Beginnings
We will continue to bring awareness about ALS and raise funds for research. We just don’t know yet exactly what that will look like. We’re brainstorming and coming up with some pretty cool ideas, and when we know what our CURE ALS future will look like, we’ll share details with you.
A few ALS families have approached us about starting their own tournament – we’ll let you know where and when! And if that’s something that you’d also like to do, please email us at KathyTavano@WeWillCureALS.com.
We’ll be retiring our CURE ALS Golf email and replacing it with Together@WeWillCureALS. Keep an eye for it in your inbox!
A LOOK BACK
By clicking the link below, take a look back at a video we made at one of our early tournaments. Over the years, over 2300 golfers and over 500 volunteers participated in our tournaments. The thoughts, emotions, and the passion in this video are what allowed us to have 13 successful tournaments and allowed us to fund over $1 Million of ALS research.
Click here to view the video
Reaching the $1 Million of ALS research was A goal, but our ultimate goal was, and continues to be, finding a cure for ALS.
Paul was diagnosed with ALS in 2009, and we heard 2 to 5 years. There was little research, very few clinical trials taking place, and just 1 treatment. There was no hope.
Now, since the beginning of 2022, 117 clinical trials worldwide are ongoing or recruiting. There are now 2 treatments instead of 1. And there is a 3rd being reviewed this month by the FDA. Now, there is hope.
ANNOUNCEMENT #2: Bittersweet Emotions
We at CURE ALS have decided that this year’s tournament will be our last. It was a difficult decision to make, but it’s the right one for us.
Please know that Paul and I and our family thank you tremendously for your support. There are no words to describe what it feels like to be the recipient of the kind of support we have received over the years. It’s kept us strong, it’s given us a feeling of security, and it’s let us feel your friendship and love. Thank you for that.
Numerous ALS families have joined us on this journey, coming year after year to honor or remember their loved ones impacted by ALS. At the post-golf ceremony, we asked ALS families to stand and share the name of their loved one who had been impacted by ALS. As name after name after name was called out, the importance of why we fund research rang loud and clear.
ANNOUNCEMENT #3: New Beginnings
We will continue to bring awareness about ALS and raise funds for research. We just don’t know yet exactly what that will look like. We’re brainstorming and coming up with some pretty cool ideas, and when we know what our CURE ALS future will look like, we’ll share details with you.
A few ALS families have approached us about starting their own tournament – we’ll let you know where and when! And if that’s something that you’d also like to do, please email us at KathyTavano@WeWillCureALS.com.
We’ll be retiring our CURE ALS Golf email and replacing it with Together@WeWillCureALS. Keep an eye for it in your inbox!
A LOOK BACK
By clicking the link below, take a look back at a video we made at one of our early tournaments. Over the years, over 2300 golfers and over 500 volunteers participated in our tournaments. The thoughts, emotions, and the passion in this video are what allowed us to have 13 successful tournaments and allowed us to fund over $1 Million of ALS research.
Click here to view the video
Together … we will CURE ALS!
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