Living with ALS
Equipment Loan Programs
Equipment loan programs make used and donated medical equipment available to persons living with ALS. Check with your doctor, ALS clinic, hospital, or ALS organization for availability and eligibility criteria.
Small changes can make a big difference in home accessibility, personal safety, and retaining independence.
Support groups are a wonderful way to meet other people living with ALS and to learn from them ... WHEN YOU ARE READY. Before attending a support group, perhaps a friend or loved one can attend a support group and report back to you on what it was like.
ALS "webinars" are live or archived online seminars relating to ALS for people with ALS. Experts discuss a variety of topics, including living with ALS, caregiving, and research. Live webinars offer participants the opportunity to ask questions directly to the experts.
To find out the latest schedule of webinars:
Confused by all the different "cures" and "treatments" for ALS you find on the internet? ALSUntangled helps those dealing with ALS to review alternative and off-label ALS treatments.
To check out alternative and off-label ALS treatments or to ask about one, go to ALSUntangled.
Patients Like Me
PatientsLikeMe believes in the power of community to improve the lives and experience of patients managing complex health conditions, including ALS. Their platform empowers patients to navigate their health journeys by sharing their personal experiences, stories, and information about their health, symptoms, and treatments, with a goal to improve the lives of all patients through knowledge derived from shared real-world experiences and outcomes.